Feb 4, 2010
More Labs at CHOC/Interview with Josiah
Josiah went in for labs and will have a bone marrow biopsy & aspiration on Thursday. He also needs one final test to determine which treatment options we will do. Then comes all the research of the pros and cons of all the treatment options and deciding which steps to take. UG. With the state of Josiah's health and the treatment he's had so far, we need to get this done quickly. To many transfusions have negative consequences, and he's getting up there. It is serious and things may or may not work out the way we hope they will. But, It could always be worse. My perspective is that through all this we know Christ has a purpose for all this. I can't complain. We have access to treatment many in the world don't. I am grateful, privileged and BLESSED! We may not have much, but I am not living in the garbage slums of Kenya or the tent cities in Haiti. We may be broke but we are fed and clothed. I am praying for discernment and wisdom in the upcoming days of making the right medical decisions. I am praying for peace and for provision for our family. We are fervently praying for work for Huatzin. We are also searching for Aplastic Anemia Support Groups for those raising children with the disorder to help guide us in research and decisions. ______ *You don't need to see the way if you follow the one that is the Way.- Author Unknown *Nothing takes God by surprise. He knows the future and can therefore guide us through its trackless ways.-- W. T. Purkiser *Wisdom is, and starts with, the humility to accept the fact that you don't have all the right answers, and the courage to learn to ask the right questions.-- Author Unknown
Labels:
Aplastic Anemia,
Children with Aplastic Anemia,
CHOC,
Josiah
1 comments:
I received a google alert about your son and read your blog. Have you contacted the Aplastic Anemia & MDS International Foundation? They can direct you to support groups, educational and research materials. My son has been fighting this disease for almost 5 years. He has been involved in two clinical trials and is currently preparing for a bone marrow transplant. If you would like to contact me my email is darylfranks@hotmail.com. God Bless and I hope this helps...
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